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The webinar on clinical trials, with an overview of the latest developments, is now available to watch online. The webinar “Research insights: Latest updates on ongoing studies” was arranged by the European Huntington Association (EHA) in October.You find it on EHA:s website
https://www.huntington-research.lu.se/article/webinar-clinical-trials-now-available-online - 2025-10-25
Huntington Disease Center in Lund is inviting you to an information evening on 7 April 2025, 18.00-20.30 in the Belfrage lecture hall on BMC D15 in Lund. The evening will include update on clinical trials and current research status in Sweden and internationally, as well as talks on different aspects on Huntington disease: from social interaction to difficulty swallowing, dysphagia. Representative
https://www.huntington-research.lu.se/article/save-date-hd-information-evening-7-april-2025 - 2025-10-25
Sign up for the Information Evening on HD! If you wish to attend the Information Evening on Huntington Disease on 7 April 2025, sign up latest on 27 March 2025.All talks are in Swedish. Find out more on the Huntington Disease Center's page: Huntington Disease Center
https://www.huntington-research.lu.se/article/information-evening-hd-7-april-2025 - 2025-10-25
The European Huntington’s disease network (EHDN), with more than 3000 members, gather healthcare professionals, researchers and families with Huntington’s disease. Petersén was elected to the Executive Committee in 2022 and is now Deputy Chair.Link to the EHDN webpage: EHDN.org
https://www.huntington-research.lu.se/article/petersen-elected-deputy-chair-ehdn - 2025-10-25
Development of international guidelines for treatment of psychiatric symptoms in advanced Huntington's disease is in progress within the European Huntington's Disease Network (EHDN). The working group focusing on "Behavioural Phenotype” in Huntington's disease is addressing these guidelines. As part of the work, some members of the group recently met in Amsterdam, together with colleagues from USA
https://www.huntington-research.lu.se/article/work-progress-international-guidelines-treatment-psychiatric-symptoms - 2025-10-25
The month of May is Huntington’s Disease Awareness Month and 15 May was Huntington Awareness Day. Åsa Petersén was invited to take part in a podcast about the disease, together with Jozefine, who is a carrier of the gene and related to a person diagnosed with HD.The podcast is produced by YTAN, Young Together Against Neurodegenerative Diseases, a digital platform for young relatives of persons wit
https://www.huntington-research.lu.se/article/podcast-about-being-young-relative-hd-patient - 2025-10-25
The protein TDP-43 is involved in different neurodegenerative diseases, and Åsa Petersén and Sofia Bergh have investigated whether the protein harms the hypothalamus. Investigating if augmenting the quantity of the protein TDP-43 in the hypothalamus would lead to changes in the hypothalamus, emotional changes and metabolic problems was the aim of the new article from the TNU research group.Read mo
https://www.huntington-research.lu.se/article/new-paper-tnu-published - 2025-10-25
Åsa Petersén and Mahmoud A Pouladi are guest editors of the Special Issue: Glia and non-neuronal cells in Huntington's disease that was published now in August. The Special issue on Glia and non-neuronal cells in Huntington's disease holds six expert review articles. The understanding how glial and other non-neuronal cells shape HD pathology is expanding amongst researchers in the field.The topics
https://www.huntington-research.lu.se/article/petersen-guest-editor-journal-huntingtons-disease - 2025-10-25
Petersén will give a talk on her work on Huntington disease at a symposium on neurodegenerative disorders at the University of British Columbia in Vancouver, Canada on September 8, 2025. There will also be a meeting for Petersén and other partners in the JPND funded delCAA-HD research team to discuss progress of the international collaborative research efforts.
When in Sweden for their annual meeting, members of the European Huntington Association paid a visit to Lund on 28 August 2025. There they met with Åsa Petersén and Camilla Svensson, registered nurse, also working at the HD Clinic at Skåne University Hospital (SUS) in Lund, together with Åsa. Åsa showed them around the lab, demonstrated samples and talked about her research. The EHA team also got
https://www.huntington-research.lu.se/article/visit-european-huntington-association - 2025-10-25
On 9-11 September 2025 the Arturo Falaschi Conference “2nd biennial conference on TDP-43 function and dysfunction in disease” will be held in Trieste, Italy. Sofia Bergh will present her poster with the findings published earlier this summer in the article “TDP-43 overexpression in the hypothalamus drives neuropathology, dysregulates metabolism and impairs behavior in mice”.Link to the conference
https://www.huntington-research.lu.se/article/sofia-bergh-will-present-poster-tdp-43-conference - 2025-10-25
Åsa Petersén will give several talks at the conference, including one on emotions and behavior in HD, and she will also chair a session on clinical trials.The conference is arranged by the patients' organization, the European Huntington Association, and is open to all.Find out more about the conference on EHA:s webpage (opens in a new window).
https://www.huntington-research.lu.se/article/petersen-eha-conference-2025-bucharest - 2025-10-25
The National Board of Health and Welfare in Sweden has published updated information on Huntington disease on its’ webpage. These recent revisions of the text have been made by Professor Åsa Petersén, Lund University.Link to the National Board of Health and Welfare’s webpage – in Swedish only (opens in a new window).
https://www.huntington-research.lu.se/article/updated-information-hd-national-board-health-and-welfares-webpage - 2025-10-25
Professor Petersén comments on the recent positive topline results from a clinical trial with gene therapy in Huntington disease presented in a press release from uniQure. Last week, positive topline results from a clinical trial with gene therapy in Huntington disease were presented in a press release from uniQure. The news hit the headlines and spread fast through the HD community. Read Professo
https://www.huntington-research.lu.se/article/perspective-recent-positive-topline-results-gene-therapy-trial - 2025-10-25
The Swedish channel TV4 published the news on the HD clinical trials that were positively described in media in late September. Professor Åsa Petersén was interviewed about the findings by TV4 and she emphasizes the need for cautiousness when interpreting the results, as they are not yet published in a scientific magazine or reviewed by researchers not involved in the study. Link to the article on
https://www.huntington-research.lu.se/article/tv4-news-piece-hd-gene-therapy-trial - 2025-10-25
Dr Rana Soylu Kucharz presented her recent project with the title "Striatal Neuropathology induced by Hypothalamic Overexpression of Huntingtin Fragments using Adeno-associated Viral Vectors in Mice” as an oral presentation in the Short Communication session at the EHDN meeting in the Hague, the Netherlands, in September 2016.
https://www.huntington-research.lu.se/article/tnus-research-selected-oral-presentation-ehdn-meeting - 2025-10-25
Welcome to Jo Henningsen who started her postdoctoral fellowship two weeks ago with TNU. Jo will work on hypothalamic dysfunction in HD, and will be engaged in collaborations with the BRAINS unit.
https://www.huntington-research.lu.se/article/welcome-our-new-postdoc-jo-henningsen - 2025-10-25
There was an official ceremony for the new Professors at Lund University, Friday October 14 2016. Read more about Petersén's research in the official document from the ceremony and see pictures from the newspaper Sydsvenskan: Sydsvenskan broschyr-professorsinstallation-lunds-universitet-14okt2016.pdf
https://www.huntington-research.lu.se/article/petersen-official-ceremony-new-professors - 2025-10-25
Petersén is invited to give a talk entitled "Hypothalamic dysfunction in Huntington disease: relevance for non-motor features and striatal pathology" at an International Huntington Conference in Vilnius, April 7 2017.Please see programme: hd_conference_programme_20170407.pdf
https://www.huntington-research.lu.se/article/petersen-gives-talk-international-huntington-conference-vilnius - 2025-10-25
Cheong and Henningsen present their recent research findings and Petersén acts as discussion leader at the Gordon Research Conference on CAG Triplet Repeat Disorders in Mount Snow, USA, June 2017.See program at: https://www.grc.org/cag-triplet-repeat-disorders-conference/2017/
https://www.huntington-research.lu.se/article/tnu-goes-gordon-research-conference-cag-triplet-repeat-disorders - 2025-10-25
